It was my birthday last Friday, on the 19th of February. This year I turned 45 and was honoured, grateful and very happy for all the birthday greetings that came flooding in from all corners of the world via Facebook. On days like that I really love social media. I had a very good day…… Continue reading 45 and counting
Author: SaraRiggare
Inkludera fysisk träning i riktlinjerna för Parkinson
For whose sake is research done – really?
I owe a lot to research. Thanks to an immense number of dedicated researchers, I have access to reasonably effective treatments for my Parkinson with (so far) manageable side effects. And of course we need more research, in all diseases and on all levels of health and healthcare. But, is the current process for how…… Continue reading For whose sake is research done – really?
BEAT Parkinson – på svenska
Under en helg i november 2015 var Stockholm platsen för ett nytt (för Sverige) och innovativt initiativ för träning för Parkinson. Narva boxningsklubb hade tillsammans med Parkinson Stockholm och mig bjudit in den portugisiska sjukgymnasten/fysioterapeuten Josefa Domingos för att erbjuda boxarna på Narva utbildning om Parkinsons sjukdom och dessutom prova-på träning för Parkinson Stockholms medlemmar. Det…… Continue reading BEAT Parkinson – på svenska
BEAT Parkinson – in English
On a weekend in November 2015, Stockholm was the scene for the start of a novel (for Sweden) concept for training for Parkinson’s: boxing training! The boxing club Narva had taken the initiative together with the Parkinson’s association of Stockholm and me to invite the Portuguese physical therapist Josefa Domingos to offer the boxers at Narva boxing…… Continue reading BEAT Parkinson – in English
Organising your own “health management system”
During the last few years, I have been thinking a lot about healthcare, which could be seen as strange, since I actually don’t use a lot of healthcare. If you’ve ever seen me present at a conference or watched a video of me, you have probably seen my “picture-with-all-the-dots”, so you know that I see…… Continue reading Organising your own “health management system”
The Burden of Tracking
I have called myself a self-tracker since the first time I heard the word. The concept of using technology to collect data about myself and then analysing that data to better understand different aspects of myself and my surroundings has always resonated strongly with me, both as an engineer and as a researcher. My self-tracking…… Continue reading The Burden of Tracking
Perspectives?
Most people would probably agree that being diagnosed with Parkinson’s disease (PD) at age 32 would be a hard blow. It was. I usually describe it as “it felt like I fell down into a black hole”. Stephen Hawking would probably have a lot to say about my complete disregard for the laws and theories that…… Continue reading Perspectives?
“Doktorn i fickan” – Kropp & Själ i P1
Jag medverkade i P1:s hälsojournalistiska program Kropp & Själ, se beskrivning och länk nedan. Du kan kontrollera din sömn, mäta blodtryck och EKG eller ta reda på lunchens näringsvärde. De senaste åren har marknaden för hälsoappar i mobiltelefonen exploderat. Vad ska vi med den insamlade datan till? Och hur kan vården dra nytta av den…… Continue reading “Doktorn i fickan” – Kropp & Själ i P1
Going from researching patients to patients researchers
In September I will be attending one of my favourite conferences for the third time: Stanford Medicine X! It is the most patient-inclusive conference I have ever come across and always full of people generously sharing their stories relating to medicine and health. This year I will participate in a panel discussion titled “Going from…… Continue reading Going from researching patients to patients researchers