First day of QS Europe 2011 in Amsterdam

My first ever day at an unconference and the impressions have been numerous. I love the idea of having the focus of the meeting on the breaks between the presentations, since everybody knows that the really sparking ideas are born over a cup of coffee and some strange looking local speciality (in this case I…… Continue reading First day of QS Europe 2011 in Amsterdam

Health 2.0 – “The patient joins the team”

Being a student of Health Informatics at the Karolinska Institute has introduced me to a number of interesting concepts. Already during our very first week in August of last year, we heard about “patient-centered healthcare”, “shared decision-making” and “patients as co-creators of health” and to a highly opinionated and severly inquisitive patient such as myself…… Continue reading Health 2.0 – “The patient joins the team”

In your face PD!

We all know that excercise is good for us. We do. And those of us with PD know that for us excercise is more than good, it is essential. Yes, I know, we know it, but we don’t always act upon it. I spent my first 30 odd years actively avoiding every kind of physical…… Continue reading In your face PD!

Swedish midsummer

Although Sweden’s national day is on the 6th of June (and incidentally wasn’t made a bank holiday until 2005…), the true national day of Sweden by any standards must be Midsummer’s eve. On the Friday closest to Summer Solstice everyone in Sweden with their own summer cottage will celebrate the longest day of the year together with…… Continue reading Swedish midsummer

Being brave

Last year I did the the bravest thing I have done in my life. And to me being brave has very little to do with exposing yourself to all sorts of life-threatening activities such as parachuting or bungee-jumping or even riding a bicycle down a ski slope in Slovakia in the summer (one of my friends has…… Continue reading Being brave

The first diagnosis

My previous blog ended: “I did not get back to them”, and I did not. However, my mother did. In my medical record I found that exactly 2 years after my first visit, my mother called the clinic, worried about my deterioration. I was given another examination in October of 1989 and in the record…… Continue reading The first diagnosis

The first meeting

I think I was around 13 years old when I first realised that my body did not function the same way as others’, I might even have been younger. I remember sitting on a chair in a school, community centre or something similar in the village of Ängersjö in the north of Sweden listening while…… Continue reading The first meeting

Downhill skiing

I don’t presume to have a lot of regular readers and probably fewer still will have followed me from the beginning. Which is why I would not assume that anyone remembers at what age I had my first PD symptoms. However, for some strange reason they coincided in a slightly alarming way with the first…… Continue reading Downhill skiing

“Parkinson går att leva med” – från Expressen Hälsa 2011-02-16

http://www.expressen.se/halsa/parkinson-gar-att-leva-med/ Parkinson går att leva med | Hälsa | Expressen