Health IT and security issues

For someone who has actually studied health informatics, I don’t blog as much about health IT as I probably should… Well, it’s never too late to change they say… A friend pointed me in the direction of an excellent blog post by e-patient Dave, a patient advocate I truly respect and admire for his ceaseless…… Continue reading Health IT and security issues

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Perception part 2

Perception is a strange thing. After my diagnosis of generalized dystonia on the 6th of November 1989, I tried as best I could to not be different to anyone else, to not acknowledge the disease that the neurologist had told me that I had. This proved quite a challenge, since I moved slowly at times, and…… Continue reading Perception part 2

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Perception part 1

When a person is diagnosed with a serious disease, something happens. Maybe not instantly, but most often the words “You have X”, where “X” can range from diabetes over cancer to ALS, triggers a reaction leading to a reevaluation of your life as you knew it. I saw a neurologist for the first time in…… Continue reading Perception part 1

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Healthcare vs Selfcare

I am a doctoral student at a medical university, but I am also a patient. What does the concept “patient” really mean? When is a person a “patient” and when is he/she something else? The word “patient” is derived from the Latin word “patiens” and the original meaning is “one who suffers”. In the current version,…… Continue reading Healthcare vs Selfcare

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“Vården flyttar ut på nätet” – från Metro 2012-10-16

http://www.metro.se/metrojobb/varden-flyttar-ut-pa-natet/EVHljp!blOBJZ7EarRj6/ Vården flyttar ut på nätet – Metro

Free on-line consultation with a Parkinson’s specialist

A few weeks ago, I was introduced to Ray Dorsey (photo) via an email. Ray is an MD and associate Professor of Neurology and the director of Movement Disorders Division and Neurology Telemedicine at Johns Hopkins Medicine in Baltimore and he is involved with a very interesting project. He is offering free one-time consultations for…… Continue reading Free on-line consultation with a Parkinson’s specialist

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My mission is NOT to improve healthcare…

My mission is not to improve healthcare… no, it’s not a typo… keep reading… And now that I have your attention, I will start over: My mission is not to improve healthcare, however if I succeed in my mission, healthcare will be improved in the process. In my experience, a period of frustration and hardship…… Continue reading My mission is NOT to improve healthcare…

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Balancing or not?

I find it very difficult to find the right balance. The problem is of course, that balance is key. If we didn’t have balance, what would we have? There are so many different kinds of balance: there is a balanced diet, life-work balance, balancing your accounts, etc. Compared to English, the Swedish language does not…… Continue reading Balancing or not?

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“Egna data ger bättre hälsa” från IT i Vården 2012-09-10

http://itivarden.idg.se/2.2898/1.465013/egna-data-ger-battre-halsa Egna data ger bättre hälsa – It i vården

Seminarium om patientmakt i Almedalen 4 juli 2012

Jag hade nöjet att få vara med och diskutera Patientmakt under ett seminarium med presentationer och paneldiskussion i Almedalen arrangerat av Vinnvård. Vinnvård är en forskningsstiftelse som stöder forskning som försöker besvara frågan “Hur kan vi leverera högkvalitativ vård och omsorg vid varje tillfälle, i alla situationer och på effektivaste sätt?” Johan Assarsson presenterade det…… Continue reading Seminarium om patientmakt i Almedalen 4 juli 2012